Eighteen

I skipped last year. Seventeen sits in drafts with empty copy. I distinctly recall feeling empty about diabetes this time last year, and that is clearly conveyed in my lack of entry.

You know, when diabetes turns 17 in a then 21 year old body, it hits different in a few ways. For one, we’re happy we’ve made it 17 years, yet, equally sad somehow. 17 in a 21 year old is daunting, overwhelming, and ever present.

Learning to take that first legal drink with diabetes. Like god, nothing is sacred. Diabetes invades everything and for that I will forever hold the sentiment of fuck you, diabetes, fuck you forever.

We are now 18/22. 82% of this lifetime has been living with diabetes.

That percentage caused me to stop in my tracks. 82% of my boy’s life has been working to keep himself alive while living with something that equally tries to kill him.

Imagine living with an albatross

that you didn’t ask for

that you can never get rid of

yet you have to read it’s mind

to keep it from attacking you.

Sounds like a plot to a horror movie.

It watches you when you sleep, yet you can’t see it. It robs you of energy, yet you can’t put it to rest. It brings you high one day, and even lower the next, yet you don’t have the ability to fully predict which direction it will be bring on any given day. Sometimes it plays nice. Sometimes it is downright treacherous. It never adds positivity, only removes. At best, it can be neutral for a bit, just enough to lull you into thinking you’ve hit a groove. Then it just laughs and humbles you, again, and again, and again.

In fact for 82% of your life.

Damn, diabetes we are breaking up. This just isn’t working. It’s not me, it’s you, all YOU.

Sixteen

Not sure why tears are welling up in my eyes as I type, but they are.

So many emotions.

This does not become second nature. Being a pancreas outside of your body does not become normal. It will never be normal. New normal, old normal. Whatever.

It is not normal to wake up and worry if your son lived through the night.

It is not normal to breathe a sigh of relief when you hear him shut off his morning alarm.

It is not normal to wonder if he made the drive without treating a low.

It is not normal to watch my 20-year-old son with panic in his eyes as he realizes his number is dropping faster than he can catch it.

It is not normal to check your blood sugar every time you eat.

It is not normal to rely on faulty technology to make life-and-death decisions.

It is not normal to think about how heat might affect your numbers.

It is not normal to troubleshoot why insulin would not be working correctly.

It is not normal to fight with insurance to get insulin approved.

None of this is normal.

But we get through it. Every day. Normal or not. We have to.

Fifteen

My baby boy is nineteen. His diabetes is fifteen today.

I couldn’t write yesterday. Couldn’t fully get in to words what I want to convey after 15 long years of kicking diabetes’ ass.

Today I can write.

I want to explain what living with this uninvited guest has been like these last 15 years.

It’s rude.

When you just want to ‘be’ it is there yelling at the top of its lungs seeking more attention.

My son can be mid conversation about something really close to his heart, almost bringing himself to tears (you know the teenage years) and here comes diabetes screaming, “I don’t give a fuck about your breakup, pay attention to ME. I need my sugar checked or I may go so low you pass out. Fuck your feelings, I’m all you need to worry about.”

Rude.

My son can be all packed and ready to go on vacation. Car loaded. Friends all hyped for their trip. Car started. Music blasting. Oh wait, here comes diabetes. “Pay attention to me! I know you’re all excited about the trip but I’m gonna go low RIGHT NOW so you all can sit and wait until I’m tended to.”

Rude.

My son can be tired from working 2 full days in a hot kitchen at a restaurant and looking forward to sleeping in. Ha! Diabetes laughs.

“You’re not sleeping in! Don’t you know I’m gonna need some sugar at 4am to combat a low because you worked so hard the day before!”

Or

“Don’t you know I’m gonna need a correction from the high blood sugar from the stress of working so hard the day before!”

Rude.

So yeah 15 years of living with this asshole is grating. Diabetes is an asshole. Always was and always will be.

Rude ass.